Ethical principle | Themes | Sub-themes | Source reference papers |
---|---|---|---|
Scientific research design | Selection of research question | Necessity | |
Researcher inherent biases | |||
Risk/benefit evaluation | Emergency = heightened risk | ||
Benefits relative to burdens | |||
Appropriate methodology | Lack of methodological rigor | ||
Methodological transparency | |||
Methods implemented well | |||
Critical reflection | Continuous reflexivity | ||
Collective learning | |||
Participation | Meaningful opportunity for contributing to research design and conduct | Shared understanding | |
Partnership model | |||
Advising on management of ethical issues | |||
Fair selection of participants | Selection according to research objectives | [36] | |
Risks of targeted selection | [21] | ||
Informed by local knowledge | |||
Informed consent: | Informed consent as an accepted ethical norm | ||
As a contested concept | |||
As (flexible) process | |||
Procedural considerations | |||
i. Information provided | Consent as “informed” | ||
Information provided | |||
ii. Comprehension of information | Strength of information exchange process | ||
Barriers to comprehension | |||
Strategies to verify comprehension | |||
iii. Voluntariness | Factors influencing | ||
Potential coercion due to emergency context | |||
Autonomy and capacity | Normative connections | ||
Decision-making capacity debate | |||
Limiting potential exploitation | |||
Procedural considerations | |||
Confidentiality and anonymity | Increased importance of in emergencies | ||
Limits in emergencies | |||
Harms if breached | |||
Duty to safeguard | |||
Management of data | |||
Safety | Participant vulnerability i. Protection needs | Protection framework | |
Vulnerability: contested concept | |||
Individual situational approach | |||
Serious mental disorders | |||
Potential for exploitation | |||
Accountability i. Fair selection and specialist training of research and auxiliary staff | Adequate preparation | ||
Answerable to stakeholders | |||
Transparent staff selection | |||
Specialist training | [1, 14, 21, 23, 24, 27, 32, 35, 39, 43, 45, 51, 52, 54, 55, 58, 61, 65] | ||
Tensions in collaborative partnerships | [22] | ||
Researcher self-care | Protecting against negative reactions to emergency context and/or research topic | ||
Self- and team-care strategies | |||
Environmental, political and health safety | Working “in-extremis” | ||
Procedures to respond | |||
Neutrality | Access and exit strategies i. Gatekeepers and power | Coordinating with existing systems | |
Power & knowledge asymmetries | |||
Gatekeepers: benefits and critique of | |||
Transparency towards power | |||
Coordination with other researchers and organisations | Mutual respect /trust | ||
International collaborations and power | |||
Networked with emergency response | |||
Risk of poor coordination | |||
Declaration of researcher interests | Transparency about | ||
Funding | Power of | ||
Impact of emergency upon budget / funding | |||
Advocacy to funders | |||
Purpose and benefit | Sustainable benefit | Levels of benefits | |
Haphazard process of accruing | |||
Long-term collaborations & sustainable benefit | |||
Dissemination | Right to results | ||
Potential risks in | |||
Forms of | |||
Of data collection tools and methods | |||
Ethical review | As accepted norm | ||
Responsibilities of reviewers | |||
Lack of specificity to emergencies |